Showing posts with label pain. Show all posts
Showing posts with label pain. Show all posts

Thursday, May 28, 2015

Nine months

It was just yesterday that I was dropping of my big boy for his first day of Pre-K. And here we are, finishing up the year and I have a Kindergartener on my hands.

How exactly does it happen?

I reflect on just how much he has changed in that span from August to May. In all reality, 9 months is so short - its just the time it takes for someone to have a pregnancy, the time it takes for people to safely lose weight, and its the amount of time it takes to get a copyright. In that time though, big C has had a birthday, a few good holidays and all the seasons in between.

When I dropped him off for his first day of Pre-K, he was still three. He was shorter, ornery, and huggable. He liked extra cuddle time, he needed help making every little decision and he was learning about his personal choices and consequences. He adored spending time with my best friend, Andi. She would come and play angry birds with him on the iPad, give him hugs and build marble tracks with him. He loved it.

He's so big now, the boy that made me a mom.

So opinionated. He moves so quickly, is tall, and is four. He's a great big brother, often sharing with his brother or pointing out the new things his brother has learned. He prays nightly for his friend Andi that he misses, and prays for her family. Every. Single. Night.

He is the most tender hearted, compassionate guy when it comes to his loved ones. He loves stairs, thrives on routine, and still is addicted to his morning sippy cup with milk. (Daddy swears the milk doesn't taste the same if you take the sippy away, so I guess it will stay for now).

Caysen has changed too. He went from just learning how to walk, to trying to run. He went from no teeth, to 12 teeth. (only 4 on the bottom!) He went from super short and barely growing to gaining inches. He went from barely talking to nodding yes and no, signing more and speaking more clearly. He went from crying at drop off to church nursery, to walking in and waving bye, as he's ready to play with their toys. He went from crying in swimming lessons to begging for more, wanting to jump off the side over and over.

I look at how my life has changed. I stopped pumping for Caysen in that time, dealt with another winter, learned how to shoot a gun, took on an intern at work, and Caysen got his first real sick bug, which was super scary for a bit because of course all the signs of sickness are also the signs of heart failure. I learned the importance of a good strong hug. I learned the importance of appreciating others. I learned that I desperately love thieves essential oil to help with any sickies. And, I lost my very best friend, in an incredibly unexpected and painful change to the story that I had pictured in my head. Through her loss, I gained a new best friend. I researched more than you would imagine about health concerns and HLHS. I cried more than I ever thought possible. It's hard to describe the changes that are so small yet they seem like something insurmountable, but really, things are just SO different.

When I think back to where I was in August, I NEVER would have pictured this road. The way things have changed. Doing life so differently than I was before, yet still so similiar.

God has a plan. He knows what he is doing, and He knows better than I do about what will come and what is to be. I have to trust in Him. Trust in the path he is taking us on. Trust that this road that we are taking, this one that I didn't picture, is indeed the perfect path.
God always has different ways of drawing us near, bringing us back to Him. In those moments when we feel alone, those most painful nights, God is closer than we can imagine. He is over everything, walking us through it, by our side. Like it says in Exodus 14:14 - The Lord will fight for you, You need only be still. And in those dark moments, he is fighting to draw you close.

2 years ago in May, I started having health problems while pregnant with Caysen, including loss of vision. If you had told me 2 years ago that this is the road we would travel and the path we would take, if you were to tell me all the things that were to happen to us in that time, including heart defects, open heart surgeries and traveling across the country for medical care; I would NEVER in a million years believe you. I wouldn't believe the people that have come into my life. In the same respects I wouldn't believe the ones that have gone WAY too soon, jerked so painfully out of my life that the hurt remains. I wouldn't believe the things we have seen and done, or the things we have put our kids through. It would be hard to fathom what we as a family could survive and endure; and how we could grow our faith like we have.

But God is good, and always good. We will shout it from the rooftops, just what he has given us. Best friends that save our child's life. (I mean, how many people can say that?) A child that we can look at and just appreciate how far he has come in a short time, that is nothing short of a miracle. Friends, family, and another day to share His great love, and to love each other. Take it all in, friends. If you learn anything from me, please don't miss that! Time here is short, be thankful for what you have loved, and for what you have loved and lost.

It can be so easy to wall off, close up, shut everything inward. But no, we are supposed to share burdens, love unconditionally and speak life into one another.

So thankful for the last nine months. For the growth as a family. When I reflect back, I am sure to cherish each step. Because in those 9 months I learned just how quickly life can change, and how short our time is here.

So...how are you using your time?



First day:



















Last day:











Tuesday, May 5, 2015

Time. And thoughts...

May already? Where does the time go?

Time.

Time passes so quickly. Caysen is two months shy of 2. I can't believe it! I'm 3 months out from losing my best friend. It seems so short, yet like an eternity. Our lives are but a mist, as it says in James 4. Hard to keep that in perspective, but we will be reunited. Must. Focus. On. That. It's still so difficult, getting further away. You know, the distance and space of time. It's all really hard to wrap my brain around and to fully comprehend.


Pain.

Pain is still so strong at times, and at others leaves a smile on my face. It's weird how it does that. God doesn't protect us from the pain, but he calls us on these paths. And its on these paths that so often its incredibly painful before it's beautiful. It is hard to focus on the beauty in the midst of pain. I know there is beauty in the fact that she is happy, healthy, hearing, whole, loved. Doesn't mean it isn't still painful, though. This translates into many other parts of my life. It is incredibly painful to watch my child undergo procedures or surgeries and to not be able to take his pain. It can be physically painful for me to hold him down while he cries out wanting me to save him. But in the end, I can look at his journey and see how beautiful it has been. How strong and brave he is, the courage that he has. It reminds me what a testimony he has to share with others, and most importantly the new and valuable relationships he has brought to my life.

Trust.

A smart friend of mine said that "insecurity breeds lies and vulnerability breeds trust". Learn to be vulnerable. Be honest and open. It takes bravery, but it allows you to be restored in a way that only God can do. Trust is the single hardest thing to do, because when you trust, you have to believe in others. You wear your heart on your sleeve and risk being hurt much easier and deeper than others. But by trusting others, you are allowing yourself to see true beauty that you can't see if you are guarded and closed.


Loyalty.

Having those people in your life that you can count on. That you can call on to understand you or just "get it", are imperative. Knowing that no matter what happens, you have that person/people on your side, it's a true gift. Don't let those people go. The ones that fight for you, when you forget how to fight. They are a true treasure, with the God given ability to pick you up when no one else can.

And the greatest of these is Love.

Love and appreciation for those that have impacted my life is ever present. I am better able to recognize what is important in my life, my list of priorities has definitely changed. Don't take a single second for granted! Love is never wrong, and is always worth it, even if it causes pain or heartbreak. I love to love.  This includes people, friends and family, as unconditionally and strongly as I am able. Why? Becuase that is how God loves us. "His love is fierce, it is strong, it is furious". God's love for us is so deep, that we can KNOW that he never starts something without having a plan. We may not see the end, or understand it when we get to it, but He has his reasonings. Maybe its because he's saving us from a future we can't understand, or torment we don't deserve. God can help us to heal, He loves us. In His arms we can know the true meaning of love. I've learned the beauty of loving others as Christ loved us. It's one of the best things we can do, and despite the pain, the vulnerability, and the sacrifices, it's truly one of the most honest and rewarding things to do.

Just some quick thoughts on this Cinco de Mayo.



Tuesday, March 31, 2015

On Grief


Grief.

It's a tidal wave of emotions, a pool you can't seem to swim out of. You seem to have forgotten your life vest, and you do your best to just float.

Some days are good. You accept things, you realize why things are that way and the hurt is minimal. But other days...it hits you like a ton of bricks. It's so incredibly difficult and no matter what you do, you can't seem to get out of your funk. You question why repeatedly, and you just can't seem to understand. The hurt cuts so deep that you would do anything to get away from the pain.

I was watching Grey's Anatomy a few weeks ago they said a line about one of the characters who was undergoing a surgery and not expected to live.

"She's in my head, but I'm not ready for my head to be the only place where she exists." 


yeah, that. Do you think anyone is EVER ready for that? I can make a safe assumption here to say that in most cases, no. People aren't ready for that. I can think of all of the friends, family and co-workers of my dear Andi, and I can tell you in that instance? Beyond a shadow of a doubt, NO. Definitely not.

I've done a lot of reading lately, Bible devotionals, books, really anything. A few on the specific topic of grief and healthy grief. One thing that seems to come up repeatedly is that if you don't talk about it and deal with it from the beginning, it manifests in unhealthy ways and will continue to be a bother for years, even messing with your own personal health.

I read this particular exerpt in one of my Bible reading plans on YouVersion. It's called Deep Grief and is by Lysa TerKeurst:

Deep Grief

I stood at the side of a casket too small to accept. Pink roses were draped everywhere. And I watched my mom as she lay across the casket. Within that casket laid part of her heart, so quiet and so still. Her little girl was gone.

It was the type of loss that cuts a heart so viciously it forever defines you. A loss called "deep grief'.

I remember standing paralyzed at the funeral. Just days before we were doing everyday things; suddently it all stopped. People were everywhere. Soft chatter filled in the gaps of our stunned silence. Eventually people went back to their own lives, and we carried on with ours, bound in deep grief.

I desperately longed for God to fix things. To take away my bloodshot eyes. To take away my anger toward him. To take away my guilt for being the one that lived. I felt I didn't deserve to be happy, ever.

This is the reality of deep grief. Even when you love God and believe in his promises, healing takes time.

It takes wading through an ocean of tears.

It takes discovering one day that the sun still shines and it's okay to smile.

It takes prayer, and a decison to stop asking for answers and to start asking for perspective.

Then one day you take off the blanket of deep grief. You fold it neatly and tuck it away. You no longer hate or resist it. For underneath it, wondrous things have happened. Things that can only come about when Divine hope intersects with a broken world.

And finally you can see years stretching before you once again. You look up, blow a kiss, wipe a tear and find it's still possible to dance.


I just love how she worded this. It is so honest and true. Those are all of the initial feelings that one might feel, and it is just so hard to accept. She goes on to the part where she talks about taking off the blanket of deep grief. The first thing I noticed is that she didn't mention a time frame. Because, there is no time frame. It takes as long as it takes. You may wear that blanket for a LONG time. It may take a while before you feel comfortable without it. You get to a love/hate relationship with that blanket. It's almost like a security blanket, but at the same time it's not healthy. Because what grown adult takes their blanket with them everywhere? But that doesn't mean that it's a bad thing. In that moment, at that time, you do what you need to do to cope. To grieve. She gives hope, saying that eventually one day you will be able to step away from it. You won't have such a love/hate relationship with grief. The part where she mentioned that you will "see years stretching before you once again"? That part is SO comforting to read. When you lose a loved one, and especially unexpectedly, it seems like you can barely see until tomorrow. The thought of looking ahead is an impossible task. There is just no way to even think of seeing years ahead. It is just unfathomable.

It's good to know that one day it will be.

Even in the Bible, Jesus wept over the death of his dear friend, Lazarus.

It says in John 11:33-36; (we pick up where Jesus is speaking to Mary - who was the sister of Lazarus)

When Jesus saw her weeping, and the Jews who had come along with her also weeping, he was deeply moved in spirit and troubled. "Where have you laid him?" he asked. "Come and see, Lord," they replied. Jesus wept. Then the Jews said, "See how he loved him!"

How beautiful is this scripture? Jesus wept right along with them. Jesus was not above the painful and crushing emotion. Jesus wept. And so can we. It's perfectly normal. God wants to hear your heart, and by letting it all out he can slowly begin the process of helping you heal. God weeps along side us as we grieve our loved ones. He feels our hurt and knows our pain. And when we start to heal, he can give us hope and comfort. We may begin to realize what a beautiful place our loved ones have reached. To have all the things the Lord can bless them with in heaven, and to be perfectly healed and well, and rejoicing in His greatness.

But for now, it's okay to cry. Its okay to hurt, to be mad and sad. To be homesick to join those loved ones in heaven. Because they are experiencing one of the most beautiful things that anyone has ever been given, and to join them one day in heaven will be a glorious meeting. Our time will come, but for now we must carry on their legacy here on earth. And what an honor it is, to have the chance to do that!








Thursday, March 5, 2015

Time Heals All Wounds...or Not.


Yesterday was tough. A month has passed, and Andi just seems so incredibly far. I don't want to be further away. The further away from that day we go, it almost seems to make it worse.




The saying goes, "Time heals all wounds".




That saying makes me wrinkle my nose in frustration. 





Why, you might ask? Simply because, the wounds remain. Eventually, like you would have with a real life wound, it will scab over and be covered with scar tissue but visible scarring remains. On top of that, you also have the emotional pain associated with the injury.





No matter how you are hurt, scars remain. Those scars remind us that the past is, indeed, incredibly real. 





Unfortunately, as time goes on from such a great loss, the pain remains fresh for those close. The wounds they bear seem to be cut that much deeper, wider and the injury is just so intensely and consistently present. To those that weren't as close, they seem to carry on without as much pain or hurt. It's as if their scars heal so much quicker, and those of us trying to slowly heal get left behind and forgotten about. We seem to sit behind stuck in a dimly lit hospital room attached to a wound vac because our non-healing and stubborn wound has left us hospital bound, unable to free ourselves from cords to get out to the fresh air and everyday routine. (sorry for the hospital reference there..)





The hard part about losing a loved one? The scars aren't visible to just a passer by. To co workers, to strangers, or even on a day by day basis. You can't know the injury by looking, there is no attached wound vac, no zipper scar, no visible chest tube scarring. When others look at me, they don't know the scars on my heart and soul, the pain of my loss, or that I have only acknowledged that loss no less than a hundred times already in the span of six hours upon waking for my day.





Sure, time will help to heal the wound of loss, but there will always be reminders. 





But at the same time, I almost don't want to heal. I want those reminders. I want them repeatedly, so that the legacy of my beautiful friend lives on. I don't want it to heal completely and be like our friendship never happened, our support of each other, our disagreements, and our amazing triumphs over difficulties and trials. I want to be marked, forever. People need to know what I knew about her as a person. They need to know how she changed lives. They need to know about her compassion for others, how genuine her love was for her patients and families, and the way she served others. They need to know how she saved lives. 





In the same way, I want to be sure that I live my life so it is known that I have been marked by Christ. I want reminders of his goodness, his grace, how he has walked me through the hard times and how I can prove it by my scars. People need to know Him. I need to share with others His goodness, His encompassing love that surrounds me and gives me peace when I feel like there is just no hope. They need to know how He changes lives, how He cares for us.  In the same way that Andi helped saved Caysen's life, others need to know He saves lives. They need to know that we get to see her again, because of Him. That she is safe and healthy and with those who went before her - because of Him. They need to know by His grace, we are saved through faith. They need to know that He saved her.





Wounds suck. Especially the slow healing ones. As time goes on, it seems as if others have forgotten, but I have not. I'm still deeply changed by the loss of Andi, and always will be.





Thankfully, God has given me new interactions to try to help me with healing. Friends and family of Andi's that are with me as we walk through this healing process. I will always speak of Andi and share about what she did for us. I will always try to live my life in the way she did, serving others and being so incredibly selfless. (I remember when she told me that she couldn't drive through a McDonalds without donating EVERY TIME to Ronald McDonald House because she knew how many people were served by those - including some of her very dear friends.) She spent more time thinking about others than herself. She always went the extra step, whether she had the time or energy for it, she did it anyway because she cared. She was dedicated to helping those in need - and the more I think about it, that is very Christ-like in itself. 





I want to be sure I live that way. Caring for others, devoted to them, and most importantly sharing the love of Christ. Andi is happy and healed and well in heaven, and we can all have that too! We all have that to look forward to. We have that because of God's deep love for us. All we have to do is accept it.





It's a place that is so beautifully perfect, we don't need time to heal wounds. We will already be healed. Perfectly. 





There will be no scars. 





"He will wipe every tear from their eyes. There will be no more death or mourning or crying or pain, for the old order of things has passed away. He who has seated on the throne said, 'I am making everything new!' Then he said, 'Write this down, for these things are trustworthy and true'". - Revelation 21: 4-5





“Listen to God with a broken heart. He is not only the doctor who mends it, but also the father who wipes away the tears.”